How Would I React to a Dementia Diagnosis?

Many of us worry about dementia. The early symptoms often include short-term memory loss, a common experience for many of us. We all occasionally forget someone's name or walk into a room and forget why we are there. For those aware of dementia, such moments can raise concerns about potential early signs of the condition.

I often wonder how I would react if I developed dementia myself. One key point I emphasise in the dementia awareness sessions I conduct is that dementia affects individuals differently. This diversity is evident when interacting with people living with dementia. Some individuals, understandably worried by their condition, become more introverted and less interactive. Others, however, become less inhibited and continue to enjoy life.

Most of the people I meet who are living with dementia were not known to me before their diagnosis, so I cannot compare their current behaviours to their pre-dementia personalities. However, I believe that dementia behaviours are linked to earlier beliefs and behaviours. For instance, if you enjoy socialising and being active now, those traits might persist even after a dementia diagnosis.

An interesting aspect to me is an individual’s self-awareness regarding their dementia. Many factors influence this, including an individual's willingness to discuss their condition and the challenges they face. If someone prefers not to talk about their health concerns with loved ones, they may be less likely to accept the diagnosis themselves and might soon forget about it. Conversely, discussing it with others can help them remember and acknowledge their condition.

Regardless of an individual's acceptance, a dementia diagnosis is rarely a complete surprise. It is, however, still frightening and worrisome, leading to varied reactions that may include depression and anxiety. Loved ones also share these concerns, contemplating the journey ahead for their family. Supporting people during these difficult times and maintaining open conversations can make a significant difference.

Alastair Shanks, Owner Right at Home and Dementia Friends Champion